| The Hahn family: Pictured
left to right are Noah, age 5, Phillip, Lexi,age 2 ½,
and Tracey.At 4 months old, Lexi Hahn was taken to her
pediatrician's office in the Sadler Clinic for a chest
X-ray because she had a case of persistent bronchitis.
At the appointment, the pediatrician told her parents,
Tracey and Phillip Hahn, of Spring, she had a slight curve
in her spine.
Ruled as the way Lexi was lying while the X-ray was
being taken, Tracey and her husband came to forget about
the curve. "We weren't concerned at the time,"
said Tracey. "We didn't know it was anything significant."
Fast-forward to October 2004, 11-month-old Lexi was
getting ready for a bath and her parents notice her
rib cage is humped to the right on her back and her
shoulders are not even. By January 2005, Lexi is diagnosed
with Idiopathic Infantile Scoliosis. "We were given
no treatment options, nor were we told it was anything
to worry about," said Tracey. "We felt lost."
Tracey immediately went online and tried to find as
much information as possible about Idiopathic Infantile
Scoliosis. What she found was a group called Infantile
Scoliosis Outreach Program, or ISOP, started by a mother
in Colorado whose daughter battled severe scoliosis.
According to the ISOP Web site, www.infantilescoliosis.org,
Infantile Scoliosis is a lateral spine deviation that
occurs during a child's first three years. Approximately
74 percent of cases resolve on their own. Of the 26
percent that don't, scoliosis not only causes physical
distortion but can also put internal organs in jeopardy
if the case is severe enough. Physicians use a Rib Vertebral
Angle Degree, RVAD, to measure the amount of curvature
and severity of the scoliosis. According to the Web
site, www.ahealthyme.com/topic/scoliosis, a normal spine,
the rib-vertebra angle difference at any vertebra is
zero.
"When Lexi was officially diagnosed in January
2005, her curvature was 22 degrees-they thought it would
self-resolve. We were told to wait, and I knew we could
not wait," said Tracey. "We had to get Lexi
help." On the Web site, Tracey read about a treatment
being done by two physicians with Shriners Children's
Hospitals. One physician is located in Salt Lake City,
Utah, and the other in Erie, Pa. Both are using a technique
perfected by Dr. Min Mehta, of England. According to
www.infantilescoliosis.org/, under general anesthesia,
the child is straightened as much as possible and then
placed in a plaster cast.
This will hold the spine in its corrected position
for two to three months and then another cast will be
placed and continue until the child is straight. In
August of 2005, Lexi and her family traveled to Erie,
Pa., for her first cast to be placed.Her curvature was
measured at 38 degrees. Once the cast was put on, it
was corrected to 13 degrees. In November of the same
year, Lexi received her second cast and was able to
continue at 13 degrees. Upon returning to Houston, the
family had to learn to live life with a cast. "While
challenging at first, we adapted as did Lexi,"
said Tracey. "This was worth the struggle, as we
knew if left untreated, one day she would end up in
an operating room having to have metal rods fused to
her spine to straighten it. We would not let this happen."
But life may have gotten a little easier for Lexi, thanks
to Miguel Gomez from Dynamic and Orthotics
& Prosthetics in Houston.
"We have a wonderful orthotist who is making her
braces and has a very innovative approach to doing this,"
said Tracey. She went on to add, "His own daughter
suffered from scoliosis and he knows the dangers if
it is left untreated." Dr. Gomez obtained
his medical degree in Colombia and makes prosthetics
and orthotic devices in Houston. In January 2006, Lexi
was put in a brace she wears 23 hours a day.
"Her curvature is now at 12 degrees and holding,"
said Tracey. It's unknown how long Lexi will have to
wear the brace, but that hasn't stopped her, or her
parents, from laughing and seeing the world through
the hopeful eyes of a toddler. "Lexi loves a lot
of things. Her main love is, honestly, shopping for
shoes. She loves to dance like a ballerina and loves
to spend hours on her art easel with her colors,"
said Tracey. "She loves to swim, which is great
therapy for her back and helps strengthen the muscles
in her back. She also loves the playgrounds and her
brace does not keep her from playing like any other
child." "The most important thing is this,"
continued Tracey.
"If your child is diagnosed with infantile scoliosis,
early treatment is the key. With waiting comes the chance
for the scoliosis to become more destructive. If you
suspect your child may have a curvature, seek the opinion
of a pediatric orthopedist, one who takes an interest
or specializes in scoliosis. We were told to wait by
ours and I did not agree. We fought about her treatment.
I always fight for what is right with Lexi." lhart@hcnonline.com
Interesting fact-According to the Web site, www.ahealthyme.com/topic/scoliosis,
girls are more likely to develop scoliosis than boys.
Children with Infantile Scoliosis can fall into two
categories, Congenital and Idiopathic.Congenital means
there is a structural cause for the scoliosis, like
vertebrae abnormalities.Idiopathic means there is no
known cause for the curvature. Web sites: www.infantilescoliosis.org
www.scoliosis.org Dynamic Orthotics & Prosthetics
in Houston.www.dynamicoandp.com Warning Signs According
to the Web site, www.ahealthyme.com/topic/scoliosis,
here are some things you should be looking out for:
*A child's shoulders may be uneven
* one or both shoulder blades may stick out * the waist
may be lopsided
* the hips may seem unusually high, or
* The child may lean to one side.If you notice asymmetry,
it's a good idea to have the doctor check it out.
©Houston Community Newspapers Online 2006
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